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and we'll take it to CONGRESS

We want to amplify your voice, your story, your journey.

Whether you are a patient, a caretaker, an advocate, a clinician, or a researcher - your rare cancer story matters.  
That’s why we have started a campaign to collect stories from around the country - with a purpose.

Each chapter will be devoted to a US state and delivered to your state’s representatives on Capitol Hill. The final book, with all 50 chapters, will be delivered to the President in January.

Help us show Congress and those in charge of creating policy that RARE IS NOT RARE.