CAMPAIGN

ABOUT THE

5

join the #RareRevolution

because

RARE IS NOT RARE

There are at least 400 forms of cancer. 380 are considered “rare.”

In 2019, nearly 1 in 3 new cancer diagnoses were rare – about 550,000 Americans.

RARE CANCER PATIENTS

remain neglected

From 2012 to 2016, 75% of clinical trials did not specifically include any rare cancers.

As of 2018, 79% of cancer patients lacking approved targeted therapy have a rare cancer.

social media campaign

toolkit

#RareIsntRare

Sample Tweets and Social Posts

Amplify the campaign by posting your support along with a picture of your bracelet because #RareIsntRare.

• Today I’m wearing my support for the @SHEPHERDFound #RareIsntRare Campaign. Join me in demanding equity for all #RareCancer patients.

• Did you know all #ChildhoodCancers are considered #RareCancers? They all deserve better. Join the @SHEPHERDFound #RareIsntRare campaign to change the system.

• All patients deserve access to life-saving therapies, resources and funding. Join me in supporting the @SHEPHERDFound #RareIsntRare campaign to amplify the voices of the #RareCancer community.

• Every patient deserves the right to live - regardless of their diagnosis.  Support the @SHEPHERDFound #RareIsntRare campaign to change the narrative around #RareCancers - so that no patient is left to die.

Facebook:
Instagram:
LinkedIn:  

@ShepherdFoundation
@Shepherd_Foundation
@ShepherdFoundation

changing the narrative with our partner

BIRD & STONE

We are committed to ethically-made products that support organizations building a more equal world.

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We believe in creating a community of changemakers, and leveraging our collective purchasing power to drive change.

Support the campaign and purchase your cuff bracelet HERE to share the RARE ISN'T RARE message with the world.