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CAMPAIGN
ABOUT THE
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changing
the narrative
SO NO PATIENT IS LEFT BEHIND
Read our Executive Director's statement about the campaign here
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JOIN THE FIGHT
because
#RareIsntRare
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There are at least 400 forms of cancer. 380 are considered “rare.”
In 2019, nearly 1 in 3 new cancer diagnoses were rare – about 550,000 Americans.
RARE CANCER PATIENTS
remain neglected
From 2012 to 2016, 75% of clinical trials did not specifically include any rare cancers.
As of 2018, 79% of cancer patients lacking approved targeted therapy have a rare cancer.
#RareIsntRare
"ALL #ChildhoodCancers are considered "rare". We can & must do better - every child deserves access to life-saving #therapies! SHARE the #RareIsntRare campaign to #advocate & let the world know that we will no longer accept death sentences for our children."
SHARE YOUR SUPPORT
social media
campaign
toolkit
#RareIsntRare
Sample Tweets and Social Posts
Amplify the campaign by posting your support along with a picture of your bracelet because #RareIsntRare.
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Today I’m wearing my support for the @SHEPHERDFound #RareIsntRare Campaign. Join me in demanding #equity for all #RareCancer #patients.
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Did you know all #ChildhoodCancers are considered #RareCancers? They all deserve better. Join the @SHEPHERDFound #RareIsntRare campaign to change the system.
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Survival shouldn't be determined by skin color, age, zip code, income, circumstance, or specific #cancer #diagnosis. Join the @SHEPHERDFound #RareIsntRare campaign to rethink #HealthJustice & elevate the voices of neglected & underserved #patient communities.
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Every patient deserves the right to live - regardless of their diagnosis. Support the @SHEPHERDFound #RareIsntRare campaign to change the narrative around #RareCancers - so that no patient is left to die.
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All patients deserve access to life-saving therapies, resources and funding. Join me in supporting the @SHEPHERDFound #RareIsntRare campaign to amplify the voices of the #RareCancer community.
Facebook:
Instagram:
LinkedIn:
@ShepherdFoundation
@Shepherd_Foundation
@ShepherdFoundation
igniting the conversation with our partner
BIRD & STONE
We are committed to ethically-made products that support organizations building a more equal world.
We believe in creating a community of changemakers, and leveraging our collective purchasing power to drive change.