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CAMPAIGN

ABOUT THE

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changing

the narrative

SO NO PATIENT IS LEFT BEHIND

Read our Executive Director's statement about the campaign here

wear your

SUPPORT

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Purchase your bracelet and share this message with the world.

JOIN THE FIGHT

because

#RareIsntRare

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There are at least 400 forms of cancer. 380 are considered “rare.”

In 2019, nearly 1 in 3 new cancer diagnoses were rare – about 550,000 Americans.

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RARE CANCER PATIENTS

remain neglected

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From 2012 to 2016, 75% of clinical trials did not specifically include any rare cancers.

As of 2018, 79% of cancer patients lacking approved targeted therapy have a rare cancer.

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#RareIsntRare

"ALL #ChildhoodCancers are considered "rare". We can & must do better - every child deserves access to life-saving #therapies! SHARE the #RareIsntRare campaign to #advocate & let the world know that we will no longer accept death sentences for our children."

SHARE YOUR SUPPORT

social media

campaign

toolkit

#RareIsntRare

  • Twitter

Sample Tweets and Social Posts

Amplify the campaign by posting your support along with a picture of your bracelet because #RareIsntRare.

  • Today I’m wearing my support for the @SHEPHERDFound #RareIsntRare Campaign. Join me in demanding #equity for all #RareCancer #patients.

  • Did you know all #ChildhoodCancers are considered #RareCancers? They all deserve better. Join the @SHEPHERDFound #RareIsntRare campaign to change the system.

  • Survival shouldn't be determined by skin color, age, zip code, income, circumstance, or specific #cancer #diagnosis. Join the @SHEPHERDFound #RareIsntRare campaign to rethink #HealthJustice & elevate the voices of neglected & underserved #patient communities.

  • Every patient deserves the right to live - regardless of their diagnosis.  Support the @SHEPHERDFound #RareIsntRare campaign to change the narrative around #RareCancers - so that no patient is left to die.

  • All patients deserve access to life-saving therapies, resources and funding. Join me in supporting the @SHEPHERDFound #RareIsntRare campaign to amplify the voices of the #RareCancer community.

Facebook:
Instagram:
LinkedIn:  

@ShepherdFoundation
@Shepherd_Foundation
@ShepherdFoundation

igniting the conversation with our partner

BIRD & STONE

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We are committed to ethically-made products that support organizations building a more equal world.

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We believe in creating a community of changemakers, and leveraging our collective purchasing power to drive change.

Support the campaign and purchase your cuff bracelet HERE to share the RARE ISN'T RARE message with the world.