The SHEPHERD Foundation is in the process of collecting stories from rare cancer patients, caretakers, family members, medical personnel and anyone who has been touched by rare cancer in order to create a book to take to Congress. Each chapter will be devoted to a state which will then be delivered to your state's representatives on the Hill. The final book, with all 50 chapters, will be delivered to the White House.
Our goal is to show Congress and those in charge of creating policy that RARE IS NOT RARE, but we need you to help us create as complete a story as possible.
Will you join the #RareRevolution and fight with us to make a difference in the lives of your family and friends?
Share your story here: http://bit.ly/2ITEtpM